J Mov Disord.  2025 Apr;18(2):160-164. 10.14802/jmd.24217.

Validation of the Korean Version of the Huntington’s Disease Quality of Life Battery for Carers

• Chang HJ
• Oh E
• Yoon WT
• Lee CY
• Kwon KY
• Hwang YS
• Shin C
• Lee JY

• KMID: 2567161
• DOI: http://doi.org/10.14802/jmd.24217

Abstract

Objective
The Huntington’s Disease Quality of Life Battery for Carers (HDQoL-C) is used to evaluate caregiver quality of life. This study aimed to develop and validate the Korean version of the HDQoL-C (K-HDQoL-C) to assess the burden on Korean caregivers of Huntington’s disease (HD) patients.
Methods
A total of 19 HD caregivers (7 females, mean age 55.4±14.6 years) participated in this study. The K-HDQoL-C, a translation of the English version, consisted of demographic information, caring aspects, life satisfaction, and feelings about life. It was administered twice, 2 weeks apart. Internal consistency was evaluated using Cronbach’s α, and test-retest reliability was assessed with intraclass correlation coefficients. The relationship with the Zarit Burden Interview-12 (ZBI-12) was analyzed.
Results
The internal consistencies of the K-HDQoL-C were 0.771 (part 2), 0.938 (part 3), and 0.891 (part 4). The test-retest reliability ranged from 0.908 to 0.936. Part 3 was negatively correlated with the ZBI-12, and part 4 was positively correlated with the ZBI-12 (r=-0.780, 0.923; p<0.001).
Conclusion
The K-HDQoL-C effectively evaluates the challenges faced by HD caregivers, particularly in terms of care aspects and life satisfaction.

Keyword

Huntington’s disease; Quality of life; Caregiver burden; Burden of illness; Neurodegenerative diseases