Psychiatry Investig.  2017 Nov;14(6):779-785. 10.4306/pi.2017.14.6.779.

Do Patients Want to Listen to a Diagnosis of Dementia in Korea? Preferences on Disclosing a Diagnosis of Dementia and Discussing Advance Care Planning in Elderly Patients with Memory Concerns and Their Families

Affiliations
  • 1Department of Psychiatry, Seoul National University Hospital, Seoul, Republic of Korea. selfpsy@snu.ac.kr, psychepark@gmail.com
  • 2Department of Psychiatry, Seoul National University College of Medicine, Seoul, Republic of Korea.
  • 3Department of Neuropsychiatry, Seoul National University Bundang Hospital, Seongnam, Republic of Korea.

Abstract


OBJECTIVE
In this study, we aimed to investigate preferences regarding the disclosure of a dementia diagnosis and advance care planning (ACP) in patients with memory complaints and their families.
METHODS
A total of 98 patients who visited the department of psychiatry at a tertiary hospital with memory complaints and 62 family members completed a structured questionnaire. The questionnaire included preferences on disclosure of dementia and cancer diagnosis, awareness and preferences on ACP.
RESULTS
In total, 96.9% of patients were willing to know their dementia diagnosis. There were no significant differences in preferences between the diagnosis of cancer and dementia. Only 24.7% of patients and 45.8% of family members have heard of ACP. However, 82.8% of patients agreed on the necessity of ACP under the current condition. Multivariate analysis revealed that younger patients were more likely to agree with necessity for ACP under the current condition.
CONCLUSION
In Korea, patients with memory complaints and their family members strongly favored a disclosure of dementia diagnosis. The majority of participants also agreed on the necessity of ACP. More active involvement of patients is needed in treatment decisions and care planning in cases of dementia as well as other life-threatening illnesses.

Keyword

Disclosure; Dementia; Advance care planning; Family; Surveys and questionnaires

MeSH Terms

Advance Care Planning*
Aged*
Dementia*
Diagnosis*
Disclosure
Humans
Korea*
Memory*
Multivariate Analysis
Surveys and Questionnaires
Tertiary Care Centers
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