Korean J Hosp Palliat Care.  2011 Jun;14(2):101-109.

Quality Indicators of End-of-Life Cancer Care from the Family Members' Perspective in Korea

Affiliations
  • 1Department of Family Medicine, School of Medicine, Kyungpook National University, Daegu, Korea. ychfm@knu.ac.kr

Abstract

PURPOSE
The Assessing Care Of Vulnerable Elders project has developed indicators for the quality of the end-of-life (EOL) care. However, family members of cancer patients may have a different view on the quality indicators (QIs) established by health care experts. We evaluated the QIs from the family members' perspective.
METHODS
The information used in this study was gathered by surveying family members of cancer patients who were admitted to the inpatient hospice ward in Korea. A cross-sectional anonymous questionnaire was distributed to 120 potential respondents from July to October 2009. We included 69 responses in this study (effective response rate, 57.5%). Statistical analysis was performed by using SPSS for Win ver. 14.0, with independent t-test and Pearson's chi-square test.
RESULTS
Among QIs for good hospice care, families agreed the most on "Medical examination by the palliative care team or specialist" (88.4%) and "Dying in the family's presence" (88.4%). They agreed the least on "Discussing cardiopulmonary resuscitation with patients" (15.9%). Among QIs for bad hospice care, "Occurrence of fall or pressure ulcer are undesirable" showed the highest agreement rate (94.2%). The lowest agreement rate was 11.6% on "Dying in the hospital is undesirable." In addition, women, patients who were aware of their prognoses, and people with a high socioeconomic status tended to agree more on the QIs.
CONCLUSION
Patients' families did not agree on some of the QIs recommended by previous studies. Family members' characteristics were related to their opinions on QIs.

Keyword

Health care quality indicators; Terminal care; Attitude to death

MeSH Terms

Anonyms and Pseudonyms
Attitude to Death
Cardiopulmonary Resuscitation
Surveys and Questionnaires
Delivery of Health Care
Female
Hospice Care
Hospices
Humans
Inpatients
Korea
Palliative Care
Pressure Ulcer
Prognosis
Qi
Quality Indicators, Health Care
Social Class
Terminal Care
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