Asian Oncol Nurs.  2015 Jun;15(2):75-88. 10.5388/aon.2015.15.2.75.

An Ethnographic Research on Psychological Experiences of Mothers Caring for their Children with Recurent Cancer

• Kim SH

• KMID: 2269423
• DOI: http://doi.org/10.5388/aon.2015.15.2.75

Abstract

PURPOSE
This study was done to explore and have a deeper understanding of psychological experiences of mothers caring for their children with recurrent cancer.
METHODS
This paper applied an ethnographic research method. Using maximum variation sampling, the participants consisted of 7 mothers who were caring for their children with recurrent cancer. Data were collected through in-depth informal interviews, participant observation and telephone interviews, and analyzed following Spradley's methodology.
RESULTS
The mothers' psychological experiences were organized into one cultural theme, three categories and nine properties. The cultural theme was 'inner growth through adversity'. The three categories were 'daily life dancing on a tightrope', 'seizing hold of the string of hope', and 'being matured in life through the child's pain'.
CONCLUSION
Supportive and effective nursing intervention must be provided on the basis of a deeper understanding of mothers' experiences caring for their children with recurrent cancer, so that it could strengthen their inner growth through adversity, and ultimately improve the mothers' quality of life.

Keyword

Children; Mothers; Cancer; Recurrence; Qualitative Research

MeSH Terms

Child*
Dancing
Humans
Interviews as Topic
Mothers*
Nursing
Qualitative Research
Quality of Life
Recurrence

Reference

1. Health Insurance Review & Assessment Service. 'pediatric cancer', unlike adult, high proportion of 'leukemia'. Accessed February 15, 2015. http://www.hira.or.kr/dummy.do?pgmid=HIRAA020041000000&cmsurl=/cms/notice/02/1332351_24959.

2. An HS. Neoplastic diseases and tumors. In : An HS, editor. Hong Changeui Pediatrics. 10th ed. Seoul: Mirae-N;2012. p. 814–873.

3. Ekwall E, Temestedt B, Sorbe B. Recurrence of ovarian cancer-living in limbo. Cancer Nurs. 2007; 30(4):270–277.

4. Kim YJ. Life experience of inpatients with recurrent breast cancer. J Korean Acad Nurs. 2011; 41(2):214–224.

5. Shortman RI, Beringer A, Penn A, Malson H, Lowis SP, Sharpies PM. The experience of mothers caring for a child with a brain tumor. Child Care Health Dev. 2013; 39(5):743–749.

6. Cho HH, Yoon JW. Trends in research on children with cancer and their families in Korea. J Korean Acad Child Health Nurs. 2010; 16(1):73–83.

7. Yoo JH. A study on the parent-child relation, familism, and hyo. Parent Educ Res. 2007; 4(2):81–94.

8. Son SY. A study on maternal role image of Korean women in TV commercial ads [dissertation]. Seoul: Hongik Univ.;2013.

9. Andersen BL, Shapiro CL, Farrar WB, Crespin T, Wells-DiGregorio S. Psychological response to cancer recurrence. Cancer. 2005; 104(7):1540–1547.

10. Yang HC, Thornton LM, Shapiro CL, Anderson BL. Surviving recurrence: psychological and quality of life recovery. Cancer. 2008; 112(5):1178–1187.

11. Kang KA, Kim SJ. The difficulties for parents of children with terminal cancer. Korean J Child Health Nurs. 2005; 11(2):229–239.

12. Kenne Sarenmalm E, Thorén-Jönsson AL, Gaston-Johansson F, Ohlén J. Making sense of living under the shadow of death: adjusting to a recurrent breast cancer. Qual Health Res. 2009; 19(8):1116–1130.

13. Chae YH. Experiences on cancer recurrence of leukemic patients [dissertation]. Seoul: Kyungpook Univ.;2004.

14. Ward-Smith P, Kirk S, Hetherington M, Hubble CL. Having a child diagnoses with cancer: an assessment of values from the mother's viewpoint. J Pediatr Oncol Nurs. 2005; 22(6):320–327.

15. Spradley JP. JY Shin . Participant observation. Seoul: Cengage Learning;2009.

16. Yoo EK. Ethnography and ethnographic research method. In : Kim KB, editor. Qualitative research methodology. Seoul: Hyunmoonsa;2005. p. 223–272.

17. Ko YS. Phenomenological study on psychological experiences of parents with pediatric cancer [dissertation]. Cheonan: Baekseok Univ.;2008.

18. Jeon HW, Chang YJ. Hermeneutic phenomenological understanding on psychological experience about a mother's caring for her child suffering from pediatric cancer. Qual Res. 2002; 3(2):16–34.

19. Oh WO. Uncertainty in parents of children with cancer. Goyang: Korean Studies Information;2006.

20. Kim HS, Lee JB. Theoretical study on the bereavement process of terminal cancer patient's family. Korean J Care Manage. 2009; 2:97–125.

21. Young B, Dixon-Woods M, Findlay M, Heney D. Parenting in a crisis: conceptualising mothers of children with cancer. Soc Sci Med. 2002; 55:1835–1847.

22. Dolgin MJ, Phipps S, Fairclough DL, Sahler OJ, Askins M, Noll RB, et al. Trajectories of adjustment in mothers of children with newly diagnosed cancer: a natural history investigation. J Pediatr Psychol. 2007; 32(7):771–782.

23. Milberg A, Strang P. Protection against perceptions of powerlessness and helplessness during palliative care: the family members' perspective. Palliat Support Care. 2011; 9(3):251–262.

24. Holtslander LF, Duggleby W, William AM, Wright KE. The experience of hope for informal caregivers of palliative patients. J Palliat Care. 2005; 21(4):285–291.

25. Tedeschi RG, Calhoun LG. Posttraumatic growth: conceptual foundations and empirical evidence. Psychol Inq. 2004; 15(1):1–18.

26. Mcillmurray MB, Thomas C, Francis B, Morris S, Soothill K, Al-hamad A. The psychosocial needs of cancer patients: finding from an observational study. Eur J Cancer. 2001; 10:261–269.

27. Ministry of Health and Welfare. Ministry of Health and Welfare information system. Accessed February 1, 2015. http://www.mw.go.kr/front_new/jb/sjb030301ls.jsp?PAR_MENU_ID=03&MENU_ID=0320.

28. Song JY, Lee HK. The mediating effect of life meaning of childhood cancer patients' mothers in the link between their hope and posttraumatic growth. Korean J Couns. 2010; 11(4):1501–1517.

29. Barakat LP, Alderfer MA, Kazak AE. Posttraumatic growth in adolescent survivors of cancer and their mothers and fathers. J Pediatr Psychol. 2006; 31(4):413–419.

30. Zoellner T, Maercker A. Posttraumatic growth in clinical psychology-A critical review and introduction of a two component model. Clin Psychol Rev. 2006; 26(5):626–653.