Psychiatry Investig.  2024 Oct;21(10):1137-1148. 10.30773/pi.2024.0135.

End-of-Life Decision Making in Patients with Advanced Dementia: The Perspectives of the Korean General Population and Clinicians

Affiliations
  • 1Department of Psychiatry, Chungnam National University Hospital, Daejeon, Republic of Korea
  • 2Department of Psychiatry, College of Medicine, Chungnam National University, Daejeon, Republic of Korea
  • 3Center for Palliative Care and Clinical Ethics, Seoul National University Hospital, Seoul, Republic of Korea
  • 4Center for Integrative Care Hub, Seoul National University Hospital, Seoul, Republic of Korea
  • 5Department of Pediatrics, Yonsei University Severance Children’s Hospital, Seoul, Republic of Korea
  • 6Department of Pediatrics, Seoul National University Hospital, Seoul, Republic of Korea
  • 7Department of Psychiatry, Seoul National University Hospital, Seoul National University College of Medicine, Seoul, Republic of Korea

Abstract


Objective
Korea’s transition into a super-aged society brings to the forefront the escalating dementia prevalence and the consequent rise in mortality, highlighting the need for effective end-of-life (EOL) care strategies. Despite legislative advancements, gaps remain in addressing the medical and ethical challenges of EOL care for patients with advanced dementia, particularly in evaluating treatment options like nasogastric tube (NGT) use and mechanical ventilation (MV). This study investigates the attitudes of the general population (GP) and clinicians in Korea towards EOL treatment decisions.
Methods
A cross-sectional, web-based survey was conducted among 500 members of the GP and 200 clinicians from a university hospital. Case vignettes were used to assess attitudes towards EOL treatment decisions, specifically focusing on NGT and MV use, and to explore the influencing factors.
Results
There was a notable difference in favorable attitudes toward NGT withdrawal between the GP (62.2%) and clinicians (39.0%). Otherwise, both groups showed higher acceptance of MV withholding (82.2% [GPs] and 82.5% [clinicians]) when informed of the patient’s verbal intention regarding life-sustaining treatment (LST), and attitudes were more positive with written advance directives. Also, it was decreased when patient intentions were unclear.
Conclusion
The results suggested the need to consider NGT as a medical intervention requiring a risk-benefit analysis. Although LST decision-making in patients with advanced dementia is still limited in Korea, this study showed the shared recognition among the GP and clinicians of the importance of EOL treatment decisions that consider patient wishes and quality of life for patients with advanced dementia.

Keyword

Dementia; End-of-life; Artificial respiration; Artificial feeding; Korea
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