Asian Nurs Res.
2018 Jun;12(2):127-135. 10.1016/j.anr.2018.05.002.
Partnership Between Families of Children with Muscular Dystrophy and Health-care Professionals: From Parents' Perspective
- Affiliations
-
- 1Department of Nursing, Chang Gung University of Science and Technology, Taoyuan, Taiwan (ROC). ysli@gw.cgust.edu.tw
- 2Department of Physical Medicine and Rehabilitation, Chang Gung Memorial Hospital, Taipei, Taiwan (ROC).
- 3School of Medicine, Chang Gung University, Taoyuan, Taiwan (ROC).
- 4Department of Nursing Management, Chang Gung Memorial Hospital, Linkou, Taiwan (ROC).
- KMID: 2417610
- DOI: http://doi.org/10.1016/j.anr.2018.05.002
Abstract
- PURPOSE
At present, there is still controversy between parents of children with muscular dystrophy (MD) and health-care professionals on care issues. Partnerships can connect the affected children and their families to appropriate health-care services, to jointly face the care environment together and thereby improve the quality of life of children with MD. Therefore, the objective of this study was to explore partnerships between families and health-care professionals from the perspectives of parents of children with MD.
METHODS
Husserl's phenomenological research was applied to explore the basic structures of parents' descriptions of MD. Through purposive sampling, we conducted in-depth interviews with parents, and analyzed the data according to the theory of Giorgi. Nineteen parents (10 mothers, 9 fathers) participated in this study. The precision of the research results was tested by applying the four standards of Lincoln and Guba.
RESULTS
This study identified five constituents: feasible resources and detailed care information; the provision of an integrated medical care across systems; family and home as key elements in critical care; respect and care for family care demands; and finally, feedback and support from families.
CONCLUSION
This study demonstrated that partnerships were established by health-care professionals, enhancing the care capacity of the families, developing the preventive medicine of MD, and enhancing children's potential for self-care within the families. Hospital policies should include the promotion of family partnership care. The findings can help health-care professionals recognize the life experiences of children with MD when providing medical care.
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