Korean J Adult Nurs.  2018 Jun;30(3):277-289. 10.7475/kjan.2018.30.3.277.

The Development and Evaluation of Navigation Program for Caregivers of Stroke Patients Admitted to a Rehabilitation Centers: A Pilot Study

Affiliations
  • 1College of Nursing, DongEui Institute Technology University, Busan, Korea.
  • 2College of Nursing, Kosin University, Busan, Korea. taehope@kosin.ac.kr

Abstract

PURPOSE
This study aimed to develop a navigation program for family caregivers of stroke patients admitted to a rehabilitation hospital and evaluate differences in caregiver outcomes before and after the intervention.
METHODS
The navigation program consists of education, demonstration and return demonstration. To evaluate the program, we conducted a quasi-experimental study in 44 caregivers (22 experimental group received the navigation program vs. 22 controls group did not received). Caregivers completed the burden, anxiety, depression, self efficacy, caregiving mastery, quality of life, and patient's Activities of Daily Living (ADL). Data were collected using self-report structured questionnaires. The data were analyzed using the SPSS/WIN 21.0 with the χ2-test, and independent t-test.
RESULTS
Compared with the control group, caregivers who received the navigation program reported significant decrease in caregiver burden, depressive symptoms and anxiety and significant improvement in their mastery, self-efficacy, quality of life and patient's ADL.
CONCLUSION
Delivering the navigation program to family caregivers of stroke patients in a rehabilitation hospital setting was feasible. Our results provide preliminary support for the navigation program to reduce negative outcomes (e.g., burden, anxiety, depression) and improve positive outcomes (e.g., mastery, self efficacy, quality of life, patient's activities of daily living) in family caregivers who experience first stroke diagnosis of their loved one.


MeSH Terms

Activities of Daily Living
Anxiety
Caregivers*
Depression
Diagnosis
Education
Humans
Love
Non-Randomized Controlled Trials as Topic
Pilot Projects*
Quality of Life
Rehabilitation Centers*
Rehabilitation*
Self Efficacy
Stroke*

Reference

1. Statistics Korea. 2015 mortality tables for Korea [Internet]. Daejeon: Statistics Korea;2014. [cited 2015 March 25]. Available from:. http://www.index.go.kr/potal/main/EachDtlPageDetail.do?idx_cd=1438.
2. Arsic S, Eminovic F, Konstantinovic L, Pavlovic D, Kliajic D, Despotovic M. Correlation between functional independence and quality of executive functions in stroke patients. Turkish Journal of Physical Medicine and Rehabilitation. 2015; 61:333–8. https://doi.org/10.5152/tftrd.2015.25932.
Article
3. Kim NH, Tae YS, Choi YS, Bae JH. Influencing factors on stress in caregivers of stroke patients being admitted in rehabilitation centers. Journal of the Korea Academia-Industrial cooperation Society. 2016; 17(2):188–201. https://doi.org/10.5762/KAIS.2016.17.2.188.
Article
4. Seo GH, Oh ES. Influence of acute exercise on blood oxidative stress markers in female athletes with the different menstrual cycle status. Korean Journal of Health Promotion. 2007; 7(4):253–60.
5. Kim IJ. Sources of anxiety and burden of family caregivers of stroke patients: the role of self-efficacy and knowledge about care. Korean Journal of Adult Nursing. 2012; 24(1):1–10. https://doi.org/10.7475/kjan.2012.24.1.1.
Article
6. The Ontario Stroke Network Provincial Integrated Work Group Patient Navigation. Guiding principles for the development of a navigation model to support transitions to the community for persons with stroke and their families [Internet]. Ontario Stroke Network;2014. [cited 2014 July 1]. Available from:. https://www.corhealthontario.ca/Guiding-Principles-with-Best-Practice-Alignment.pdf.
7. Millar J, Readman T, Johnstone W. Community stroke recovery navigator program phase 2: helping stroke survivors and family caregivers from hospital to long term recovery developed by [Internet]. Stroke Recovery Association;2015. [cited 2015 May 1]. Available from:. http://strokerecoverybc.ca/wp-content/uploads/Project-outline-COMMUNITY-STROKE-RECOVERY-NAVIGATOR-PROGRAM-PHASE-2.pdf.
8. Walsh J, Young JM, Harrison JD, Butow PN, Solomon MJ, Masya L, White K. What is important in cancer care coordination? a qualitative investigation. European Journal of Cancer Care. 2011; 20(2):220–7. https://doi.org/10.1111/j.1365-2354.2010.01187.x.
Article
9. Fillion L, de Serres M, Cook S, Goupil RL, Bairati I, Doll R. Pro-fessional patient navigation in head and neck cancer. Seminars in Oncology Nursing. 2009; 25(3):212–21. https://doi.org/10.1016/j.soncn.2009.05.004.
Article
10. Suh MH, Oh KS. A study of well-being in caregivers caring for chronically ill family members. The Journal of Nurses Academic Society. 1993; 23(3):467–86. https://doi.org/10.4040/jnas.1993.23.3.467.
Article
11. Zigmoid AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatrica Scandinavia. 1983; 67(6):361–70. https://doi.org/10.1111/j.1600-0447.1983.tb09716.x.
12. Oh SM, Min KJ, Park DB. A study on the standardization of the hospital anxiety and depression scale for Koreans: a comparison of normal, depressed and anxious groups. Journal of Korean Neuropsychiatric Association. 1999; 38(2):289–96.
13. Sherer M, Maddus JE, Maddux B, Prentice-Dunn S, Jacobs B, Rogers RW. The self-efficacy scale: construction and validation psychological reports. 1982; 51(2):663–71. https://doi.org/10.2466/pr0.1982.51.2.663.
14. Oh HS. Health promoting behaviors and quality of life of Korean women with arthritis. The Journal of Nurses Academic Society. 1993; 23(4):617–30. https://doi.org/10.4040/jnas.1993.23.4.617.
Article
15. Lawton MP, Moss M, Hoffman C, Perkinson M. Two transitions in daughters' caregiving careers. The Gerontologist. 2000; 40(4):437–48. https://doi.org/10.1093/geront/40.4.437.
Article
16. Lee HS. The effects of informational & emotional support program on the anxiety, burden & caregiving mastery of patient's family member in stroke unit [master's thesis]. Jinju: Gyeongsang University;2013. p. 1–81.
17. Min SK, Lee CI, Kim KI, Suh SY, Kim DK. Development of Korean version of WHO quality of life scale abbreviated version (WHOQOL-BREF). Journal of the Korean Neuropsychiatric Association. 2000; 39(3):571–9.
18. Paloutzian RF, Ellison CW. Loneliness, spiritual well-being and quality of life. New York: John Wiley & Sones Inc;1983. p. 1–15.
19. Choi SO. Family Caregiver quality of Life: home health care nursing [master's thesis]. Gyeonggido: Ajou University;2009. p. 1–65.
20. Shah S, Vanclay F, Cooper B. Improving the sensitivity of the barthel index for stroke rehabilitation. The Journal of Clinical Epidemiology. 1989; 42(8):703–9. https://doi.org/10.1016/0895-4356(89)90065-6.
Article
21. Jung HY, Park BK, Shin HS, Kang YK, Pyun SB, Paik NJ, et al. Development of the Korean version of Modified Barthel Index (K-MBI): multicenter study for subjects with stroke. Journal of Korean Academy of Rehabilitation Medicine. 2007; 31(3):283–97.
22. Pratt K, Pinkney A, Marchildon L. Evaluating the impact of stroke survivor & caregiver support groups on successful community reintegration [Internet]. Stroke network of South-eastern Ontario;2013. [cited 2013 December 4]. Available from:. https://www.strokenetworkseo.ca/sites/strokenetworkseo.ca/files/stroke_support_group.pdf.
23. National Stroke Association. Dramatic results seen in pilot stroke recovery navigator program[Internet]. Los angeles: National Stroke Association;2016. [cited 2017 March 1]. Available from:. http://www.stroke.org/news-release/dramatic-results-seen-pilot-stroke-recovery-navigator-program.
24. Yoo EK, Jeon SH, Yang JE. The effects of a support group intervention on the burden of primary family caregivers of stroke patients. Journal of Korean Academy of Nursing. 2007; 37(5):693–702. https://doi.org/10.4040/jkan.2007.37.5.693.
Article
25. Egan M, Anderson S, McTaggart J. Community navigation for stroke survivors and their care partners: description and evaluation. Topics in Stroke Rehabilitation. 2010; 17(3):183–90. https://doi.org/10.1310/tsr1703-183.
Article
26. Kwon IG, Hong JY, Baek HJ, Nam SJ, Kim IR, Kim HJ, et al. Development and evaluation of a navigation program for newly diagnosed cancer patients. Journal of Korean Clinical Nursing Research. 2012; 18(1):111–25.
27. Yoon YM. Development and effect of a family caregivers self-efficacy enhancement program for the prevention pneumonia in stroke patients [dissertation]. Seoul: Korea University;2014. p. 1–163.
28. Jung BC, Kim HJ. The effects of rehabilitation education program for stroke patients and their family caregivers. The Korea Contents Association. 2015; 5:289–90.
29. Koo BO, Kim EY, Park MH, Park MC, Shim JM. The effect on functional recovery of self exercise program in stroke. Journal of Special Education & Rehabilitation Science. 2008; 47(1):331–47.
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