J Korean Acad Nurs Adm.  2017 Dec;23(5):504-514. 10.11111/jkana.2017.23.5.504.

Patients' Experience of Participation in Hospital Care

• Chung S
• Hwang JI

• KMID: 2408112
• DOI: http://doi.org/10.11111/jkana.2017.23.5.504

Abstract

PURPOSE
The aim of this study was to explore patients' experience of participation in their hospital care.
METHODS
Face-to-face interviews using a semi-structured interview guide were conducted with a total of 21 patients in a tertiary hospital in Seoul, South Korea. Collected data were analyzed using a qualitative content analysis.
RESULTS
Two categories of patients' experience of participation in hospital care emerged: 1) Reactive participatory activity, 2) active participatory activity. Major participatory activities included "˜complying with medical instructions', "˜listening', "˜responding' and "˜questioning'. Healthcare professionals' attentive attitudes and explanation, and availability of care equipment were facilitating factors affecting patient participation in their care, whereas limited accessibility to and poor communication with healthcare professionals, inconvenient patient room, and patient factors were barriers to their participation.
CONCLUSION
The findings in this study reveal that patients tend to participate in their care in a reactive way and that healthcare professionals have a significant role in facilitating patients' participation. Furthermore, the care environment and patient factors need to be considered to promote patient participation in hospital care.

Keyword

Patient participation; Patient experience; Hospital; Qualitative content analysis

MeSH Terms

Delivery of Health Care
Humans
Korea
Patient Participation
Patients' Rooms
Seoul
Tertiary Care Centers

Reference

1. Longtin Y, Sax H, Leape LL, Sheridan SE, Donaldson L, Pittet D. Patient participation: Current knowledge and applicability to patient safety. Mayo Clin Proc. 2010; 85(1):53–62. DOI: 10.4065/mcp.2009.0248.

2. Prey JE, Woollen J, Wilcox L, Sackeim AD, Hripcsak G, Bakken S, et al. Patient engagement in the inpatient setting: A systematic review. J Am Med Inform Assoc. 2013; 21(4):742–750. DOI: 10.1136/amiajnl-2013-002141.

3. Kolovos P, Kaitelidou D, Lemonidou C, Sachlas A, Zyga S, Sourtzi P. Patient participation in hospital care: Nursing staffs' point of view. Int J Nurs Pract. 2015; 21(3):258–268. DOI: 10.1111/ijn.12242.

4. Weingart SN, Zhu J, Chiappetta L, Stuver SO, Schneider EC, Epstein AM, et al. Hospitalized patients' participation and its impact on quality of care and patient safety. Int J Qual Health Care. 2011; 23(3):269–277. DOI: 10.1093/intqhc/mzr002.

5. Armstrong N, Herbert G, Aveling EL, Dixon Woods M, Martin G. Optimizing patient involvement in quality improvement. Health Expect. 2013; 16(3):e36–e47. DOI: 10.1111/hex.12039.

6. Vaismoradi M, Jordan S, Kangasniemi M. Patient participation in patient safety and nursing input-a systematic review. J Clin Nurs. 2015; 24(5-6):627–639. DOI: 10.1111/jocn.12664.

7. Tobiano G, Bucknall T, Marshall A, Guinane J, Chaboyer W. Patients' perceptions of participation in nursing care on medical wards. Scand J Caring Sci. 2016; 30(2):260–270. DOI: 10.1111/scs.12237.

8. Kolovos P, Kaitelidou D, Lemonidou C, Sachlas A, Sourtzi P. Patients' perceptions and preferences of participation in nursing care. J Res Nurs. 2016; 21(4):290–303. DOI: 10.1177/1744987116633498.

9. Coulter A, Ellins J. Effectiveness of strategies for informing, educating, and involving patients. BMJ. 2007; 335(7609):24–27. DOI: 10.1136/bmj.39246.581169.80.

10. Poochikian-Sarkissian S, Sidani S, Ferguson-Pare M, Doran D. Examining the relationship between patient-centred care and outcomes. Can J Neurosci Nurs. 2010; 32(4):14–21.

11. Mansell D, Poses RM, Kazis L, Duefield CA. Clinical factors that influence patients' desire for participation in decisions about illness. Arch Intern Med. 2000; 160(19):2991–2996. DOI: 10.1001/archinte.160.19.2991.

12. Eliacin J, Salyers MP, Kukla M, Matthias MS. Factors influencing patients' preferences and perceived involvement in shared decision-making in mental health care. J Ment Health. 2015; 24(1):24–28. DOI: 10.3109/09638237.2014.954695.

13. Oxelmark L, Ulin K, Chaboyer W, Bucknall T, Ringdal M. Registered nurses' experiences of patient participation in hospital care: Supporting and hindering factors patient participation in care. Scand J Caring Sci. 2017; Forthcoming. DOI: 10.1111/scs.12486.

14. Kim MJ. Differences in attitude toward patient-centeredness in patients and physicians. Korean J Med Educ. 2013; 25(2):149–156. DOI: 10.3946/kjme.2013.25.2.149.

15. Ambigapathy R, Chia YC, Ng CJ. Patient involvement in decision-making: A cross-sectional study in a Malaysian primary care clinic. BMJ Open. 2016; 6:e010063.

16. Thyssen GD, Beck A. How patients experience the surroundings in relation to patient participation: A qualitative study of inpatients with intestinal failure. Patient Prefer Adherence. 2014; 8:585–592. DOI: 10.2147/PPA.S59554.

17. Dyrstad DN, Testad I, Storm M. Older patients' participation in hospital admissions through the emergency department: An interview study of healthcare professionals. BMC Health Serv Res. 2015; 15:475. DOI: 10.1186/s12913-015-1136-1.

18. Davis RE, Jacklin R, Sevdalis N, Vincent CA. Patient involvement in patient safety: What factors influence patient participation and engagement? Health Expect. 2007; 10(3):259–267. DOI: 10.1111/j.1369-7625.2007.00450.x.

19. Hsieh HF, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005; 15(9):1277–1288. DOI: 10.1177/1049732305276687.

20. DiCicco-Bloom B, Crabtree BF. The qualitative research interview. Med Educ. 2006; 40(4):314–321. DOI: 10.1111/j.1365-2929.2006.02418.x.

21. Latimer S, Chaboyer W, Gillespie B. Patient participation in pressure injury prevention: Giving patient's a voice. Scand J Caring Sci. 2014; 28(4):648–656. DOI: 10.1111/scs.12088.

22. Sandelowski M. The problem of rigor in qualitative research. ANS Adv Nurs Sci. 1986; 8(3):27–37.

23. Sahlsten MJ, Larsson IE, Sjöström B, Plos KA. An analysis of the concept of patient participation. Nurs Forum. 2008; 43(1):2–11. DOI: 10.1111/j.1744-6198.2008.00090.x.

24. McKinlay JB, Trachtenberg F, Marceau LD, Katz JN, Fischer MA. Effects of patient medication requests on physician prescribing behavior: Results of a factorial experiment. Med Care. 2014; 52(4):294–299. DOI: 10.1097/MLR.0000000000000096.

25. Kolovos P, Kaitelidou D, Lemonidou C, Sachlas A, Sourtzi P. Patient participation in decision making during nursing care in Greece-a comparative study. Nurs Forum. 2015; 50(3):147–157. DOI: 10.1111/nuf.12089.

26. Petriwskyj A, Gibson A, Webby G. Participation and power in care: Exploring the "client" in client engagement. J Aging Stud. 2014; 31:119–131. DOI: 10.1016/j.jaging.2014.09.007.

27. Stiggelbout AM, Kiebert GM. A role for the sick role: Patient preferences regarding information and participation in clinical decision-making. CMAJ. 1997; 157(4):383–389.

28. Tobiano G, Bucknall T, Marshall A, Guinane J, Chaboyer W. Nurses' views of patient participation in nursing care. J Adv Nurs. 2015; 71(12):2741–2752. DOI: 10.1111/jan.12740.

29. Janz NK, Becker MH. The Health Belief Model: A decade later. Health Educ Q. 1984; 11(1):1–47. DOI: 10.1177/109019818401100101.

30. Joseph-Williams N, Elwyn G, Edwards A. Knowledge is not power for patients: A systematic review and thematic synthesis of patient-reported barriers and facilitators to shared decision making. Patient Educ Couns. 2014; 94(3):291–309. DOI: 10.1016/j.pec.2013.10.031.