Korean J Adult Nurs.  2017 Aug;29(4):406-418. 10.7475/kjan.2017.29.4.406.

Effects of a Home Respiratory Management Program for Patients with Amyotrophic Lateral Sclerosis

Affiliations
  • 1Department of Nursing Science, School of Oriental Medicine, Woosuk University, Wanju, Korea. msyellow45@hanmail.net
  • 2Department of Clinical Nursing, Samsung Medical Center, Seoul, Korea.
  • 3Department of Home Health Nursing, Aju University Hospital, Suwon, Korea.

Abstract

PURPOSE
The purpose of this study was the evaluation of a Home Nursing Care based Respiratory Management Program (HHNbRMP) on health care ability, respiratory and psychological status and quality of life (QoL) of patients with Amyotrophic Lateral Sclerosis (ALS). The management program utilizes a home mechanical ventilator (HMV) in the home.
METHODS
A non-randomized controlled experimental design was employed. HHNbRMP based on Cox's Interaction Model which includes cognitive assent (education, specialized medical care, case management), internal motivation (airway clearance, thoracic exercise, air accumulated exercise) and psychological response (meditation & active listening). These variables were measured first for a base line reading and then at four, twelve, and twenty-four weeks. The data were analyzed by t-test/ANOVA and Repeated Measures ANOVA/ANCOVA.
RESULTS
Only respiratory difficulty among the variables showed a significant difference at twelve and twenty-four weeks (F=7.52, p=.009; F=7.58, p=.009).
CONCLUSION
The Home Health Nursing Management program was effective in managing respiratory difficulty. The patients were satisfied with this program. Applying this program tailored to patients' condition, their respiratory health parameters would be improved.


MeSH Terms

Amyotrophic Lateral Sclerosis*
Delivery of Health Care
Home Health Nursing
Home Nursing
Humans
Motivation
Psychology
Quality of Life
Research Design
Respiration
Ventilators, Mechanical
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