Korean J Hosp Palliat Care.
2016 Sep;19(3):233-239. 10.14475/kjhpc.2016.19.3.233.
Factors Affecting Research Participation of Bereaved Families of Terminal Cancer Patients: A Prospective Preliminary Study
- Affiliations
-
- 1Department of Family Medicine, Gachon University Gil Medical Center, Incheon, Korea. spfe0211@hanmail.net
- 2Department of Family Medicine, Catholic University St. Paul's Hospital, Seoul, Korea. hw97med@hanmail.net
- 3Department of Family Medicine, Kyungpook National University Medical Center, Daegu, Korea.
- 4Department of Family Medicine, Yonsei University College of Medicine, Seoul, Korea.
- 5Department of Family Medicine, Korea University Guro Hospital, Seoul, Korea.
- 6Department of Palliative Medicine, Catholic University Seoul St. Mary's Hospital, Seoul, Korea.
- KMID: 2351386
- DOI: http://doi.org/10.14475/kjhpc.2016.19.3.233
Abstract
- PURPOSE
Little is known regarding the factors associated with the willingness of family caregivers of terminal cancer patients to participate in a bereaved survey. This study aimed to ascertain the pre-loss factors that predict actual participation in a bereaved survey.
METHODS
We conducted a prospective observational study using data from two multi-center surveys at the end-of-life and after loss. In order to identify the pre-loss factors associated with participating in the bereaved survey, we used a step-wise multivariate logistic regression analysis.
RESULTS
Among 185 bereaved individuals, 30 responded to the survey (response rate: 16.2%). There were differences between the participation group and the non-participation group regarding religion, economic status, and perceived quality of care as assessed by the Quality Care Questionnaire-End of Life. A final multivariate model revealed that bereaved individuals who professed a religion (adjusted odds ratio [aOR]=5.01; P=0.008), had a high income (aOR=4.86, P=0.003), and satisfied with the care for familial relationship (aOR=4.49, P=0.003) were more likely to engage in the bereaved survey.
CONCLUSION
Our finding suggests that improving the quality of end-of-life care may promote actual participation in a bereaved survey through easing post-loss distress. More attention should also be paid to those bereaved individuals who are hesitant to participate in a bereaved survey.
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