Korean J Hosp Palliat Care.  2016 Sep;19(3):233-239. 10.14475/kjhpc.2016.19.3.233.

Factors Affecting Research Participation of Bereaved Families of Terminal Cancer Patients: A Prospective Preliminary Study

Affiliations
  • 1Department of Family Medicine, Gachon University Gil Medical Center, Incheon, Korea. spfe0211@hanmail.net
  • 2Department of Family Medicine, Catholic University St. Paul's Hospital, Seoul, Korea. hw97med@hanmail.net
  • 3Department of Family Medicine, Kyungpook National University Medical Center, Daegu, Korea.
  • 4Department of Family Medicine, Yonsei University College of Medicine, Seoul, Korea.
  • 5Department of Family Medicine, Korea University Guro Hospital, Seoul, Korea.
  • 6Department of Palliative Medicine, Catholic University Seoul St. Mary's Hospital, Seoul, Korea.

Abstract

PURPOSE
Little is known regarding the factors associated with the willingness of family caregivers of terminal cancer patients to participate in a bereaved survey. This study aimed to ascertain the pre-loss factors that predict actual participation in a bereaved survey.
METHODS
We conducted a prospective observational study using data from two multi-center surveys at the end-of-life and after loss. In order to identify the pre-loss factors associated with participating in the bereaved survey, we used a step-wise multivariate logistic regression analysis.
RESULTS
Among 185 bereaved individuals, 30 responded to the survey (response rate: 16.2%). There were differences between the participation group and the non-participation group regarding religion, economic status, and perceived quality of care as assessed by the Quality Care Questionnaire-End of Life. A final multivariate model revealed that bereaved individuals who professed a religion (adjusted odds ratio [aOR]=5.01; P=0.008), had a high income (aOR=4.86, P=0.003), and satisfied with the care for familial relationship (aOR=4.49, P=0.003) were more likely to engage in the bereaved survey.
CONCLUSION
Our finding suggests that improving the quality of end-of-life care may promote actual participation in a bereaved survey through easing post-loss distress. More attention should also be paid to those bereaved individuals who are hesitant to participate in a bereaved survey.

Keyword

Bereavement; Neoplasms; Hospice care; Family; Surveys and questionnaires

MeSH Terms

Bereavement
Caregivers
Hospice Care
Humans
Logistic Models
Observational Study
Odds Ratio
Prospective Studies*
Surveys and Questionnaires
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