Health Commun.  2024 Jun;19(1):1-9. 10.15715/kjhcom.2024.19.1.1.

Patient-centered Medical Service Program for Disabilities Patients: Scoping Review

• Choi EK
• Bang G
• Park SY

• KMID: 2562549
• DOI: http://doi.org/10.15715/kjhcom.2024.19.1.1

Abstract

Purpose
: This study aimed to understand the current state of patient-centered care for people with disabilities by reviewing the key definitions, elements, and aspects of previously published care models/programs that borrow a patient-centered approach using a scoping review methodology.
Methods
: Following Arksey and O’Malley’s five-step methodology, we conducted a keyword search in EMBASE, Web of Science, and Pubmed for articles published from 2000 to January 2022, and a total of 30 articles were selected from 1,305 initially extracted articles. Results : A total of 13 studies developed models of care for people with disabilities based on the concept of patient-centeredness, 11 studies developed and evaluated care programs with patient- centered components, and 6 studies prospectively evaluated the effectiveness of patient-centered programs in clinical trials. The studies were generally based on multidisciplinary teams and emphasized two-way communication, collaborative relationships, multidimensional assessment, and measurement of patient needs. However, elements of patient-centeredness varied across studies, and methodologies for measuring needs and evaluating effectiveness were inconsistent. Conclusion : Based on this study, there is a need for systematic research to identify integrated and desirable patient-centeredness elements in healthcare models/programs for people with disabilities. This will enable the development of more patient-centered and friendly healthcare services for people with disabilities.

Keyword

Care model; Disabilities; Patient(family)-centered approach; Shared-decision making