J Korean Med Sci.  2024 Apr;39(12):e123. 10.3346/jkms.2024.39.e123.

For the Universal Right to Access Quality End-of-Life Care in Korea: Broadening Our Perspective After the 2018 Life-Sustaining Treatment Decisions Act

• Park HY
• Kim MS
• Yoo SH
• Lee J
• Song IG
• Jeon SY
• Choi EK

• KMID: 2554214
• DOI: http://doi.org/10.3346/jkms.2024.39.e123

Reference

1. The Seoul Shinmun. Updated 2023. Accessed December 10, 2023. https://www.seoul.co.kr/news/newsView.php?id=20230711500198 .

2. Yun YH, Han KH, Park S, Park BW, Cho CH, Kim S, et al. Attitudes of cancer patients, family caregivers, oncologists and members of the general public toward critical interventions at the end of life of terminally ill patients. CMAJ. 2011; 183(10):E673–E679. PMID: 21624907.

3. Yun YH, Kim KN, Sim JA, Yoo SH, Kim M, Kim YA, et al. Comparison of attitudes towards five end-of-life care interventions (active pain control, withdrawal of futile life-sustaining treatment, passive euthanasia, active euthanasia and physician-assisted suicide): a multicentred cross-sectional survey of Korean patients with cancer, their family caregivers, physicians and the general Korean population. BMJ Open. 2018; 8(9):e020519.

4. Meisel A, Snyder L, Quill T. American College of Physicians--American Society of Internal Medicine End-of-Life Care Consensus Panel. Seven legal barriers to end-of-life care: myths, realities, and grains of truth. JAMA. 2000; 284(19):2495–2501. PMID: 11074780.

5. Crawford GB, Dzierżanowski T, Hauser K, Larkin P, Luque-Blanco AI, Murphy I, et al. Care of the adult cancer patient at the end of life: ESMO Clinical Practice Guidelines. ESMO Open. 2021; 6(4):100225. PMID: 34474810.

6. National Institute on Aging. Providing care and comfort at the end of life. Updated 2022. Accessed December 10, 2023. https://www.nia.nih.gov/health/end-life/providing-care-and-comfort-end-life .

7. Berlinger N, Jennings B, Wolf SM. The Hastings Center Guidelines for Decisions on Life-Sustaining Treatment and Care Near the End of Life. Revised and Expanded Second Edition. New York, NY, USA: Oxford University Press;2013.

8. Kang J, Choi EK, Seo M, Ahn GS, Park HY, Hong J, et al. Care for critically and terminally ill patients and moral distress of physicians and nurses in tertiary hospitals in South Korea: a qualitative study. PLoS One. 2021; 16(12):e0260343. PMID: 34914723.

9. Heo DS, Yoo SH, Keam B, Yoo SH, Koh Y. Problems related to the act on decisions on life-sustaining treatment and directions for improvement. J Hosp Palliat Care. 2022; 25(1):1–11. PMID: 37674892.

10. National Law Information Center. Act on Decisions on Life-Sustaining Treatment for Patients in Hospice and Palliative Care or the End-of-life. Updated 2016. Accessed December 10, 2023. https://law.go.kr .

11. Lee I. South Korea’s End-of-Life Care Decisions Act: Law for Better End-of-Life Care. Cheung D, Dunn M, editors. Advance Directives Across Asia: A Comparative Socio-Legal Analysis. Cambridge, UK: Cambridge University Press;2023. p. 57–74.

12. Kim M. The problems and the improvement plan of the hospice/palliative care and dying patient’s decisions on Life-Sustaining Treatment Act. Korean J Hosp Palliat Care. 2018; 21(1):1–8.

13. National Agency for Management of Life-sustaining Treatment. Ministry of Health and Welfare. 2022 annual report: national agency for life-sustaining treatment decisions. Updated 2023. Accessed December 10, 2023. https://www.lst.go.kr .

14. Kim K, Park B, Gu B, Nam EJ, Kye SH, Choi JY. The National Hospice and Palliative Care registry in Korea. Epidemiol Health. 2022; 44:e2022079. PMID: 36177979.

15. National Hospice Center. Ministry of Health and Welfare. Hospice & palliative care in Korea: facts & figures 2022. Updated 2023. Accessed December 10, 2023. https://hospice.go.kr .

16. Jonsen AR, Siegler M, Winslade WJ. Clinical Ethics: A Practical Approach to Ethical Decisions in Clinical Medicine. New York, NY, USA: MacMillan Publishing Co.;2015.

17. Supreme Court of Korea. Supreme Court Decision 2009Da17417 decided May 21, 2009. Updated 2009. Accessed December 10, 2023. https://glaw.scourt.go.kr .

18. Kim H, Im HS, Lee KO, Min YJ, Jo JC, Choi Y, et al. Changes in decision-making process for life-sustaining treatment in patients with advanced cancer after the life-sustaining treatment decisions-making act. BMC Palliat Care. 2021; 20(1):63. PMID: 33906659.

19. Won YW, Kim HJ, Kwon JH, Lee HY, Baek SK, Kim YJ, et al. Life-sustaining treatment states in Korean cancer patients after enforcement of act on decisions on life-sustaining treatment for patients at the end of life. Cancer Res Treat. 2021; 53(4):908–916. PMID: 34082495.

20. Kim D, Yoo SH, Seo S, Lee HJ, Kim MS, Shin SJ, et al. Analysis of cancer patient decision-making and health service utilization after enforcement of the Life-Sustaining Treatment Decision-Making Act in Korea. Cancer Res Treat. 2022; 54(1):20–29. PMID: 33848413.

21. Im H, Choe HW, Oh SY, Ryu HG, Lee H. Changes in the incidence of cardiopulmonary resuscitation before and after implementation of the Life-Sustaining Treatment Decisions Act. Acute Crit Care. 2022; 37(2):237–246. PMID: 35280036.

22. Quinn KL, Wegier P, Stukel TA, Huang A, Bell CM, Tanuseputro P. Comparison of palliative care delivery in the last year of life between adults with terminal noncancer illness or cancer. JAMA Netw Open. 2021; 4(3):e210677. PMID: 33662135.

23. Statistics Korea. Korean Social Trends 2023. Updated 2023. Accessed February 15, 2023. http://sri.kostat.go.kr .

24. Heo DS. The role of hospice in Korean’s end-of-life. NECA (National Evidence-based Healthcare Collaborating Agency) Newsletter. Updated 2022. Accessed December 15, 2023. https://blog.naver.com/necahta/222908913128 .

25. Radbruch L, Payne S. White paper on standards and norms for hospice and palliative care in Europe: part 2. Eur J Palliat Care. 2010; 17(1):22–33.

26. World Health Organization. Planning and implementing palliative care services: a guide for programme managers. Updated 2016. Accessed December 15, 2023. https://www.who.int .

27. National Hospice and Palliative Care Organization. What is palliative care? Updated 2023. Accessed February 15, 2023. https://www.caringinfo.org/types-of-care/what-is-the-difference-between-palliative-care-and-hospice-care/ .

28. NHS England. Specialist palliative and end of life services. Updated 2023. Accessed February 15, 2023. https://www.england.nhs.uk/wp-content/uploads/2023/01/B1674-specialist-palliative-and-end-of-life-care-services-adult-service-specification.pdf .

29. Government of Canada. Palliative care: overview. Updated 2023. Accessed February 15, 2023. https://www.canada.ca/en/health-canada/services/health-services-benefits/palliative-care.html .

30. Department of Health. Australian Government. National Palliative Care Strategy 2018. Updated 2019. Accessed February 15, 2023. https://www.health.gov.au/resources/publications/the-national-palliative-care-strategy-2018 .

31. Cagle JG, Lee J, Ornstein KA, Guralnik JM. Hospice utilization in the United States: a prospective cohort study comparing cancer and noncancer Deaths. J Am Geriatr Soc. 2020; 68(4):783–793. PMID: 31880312.

32. Hamano J, Shima Y, Kizawa Y. Current situation and support need for non-cancer patients’ admission to inpatient hospices/palliative care units in Japan: a nationwide multicenter survey. Ann Palliat Med. 2023; 12(1):81–89. PMID: 36747383.

33. Tobin J, Rogers A, Winterburn I, Tullie S, Kalyanasundaram A, Kuhn I, et al. Hospice care access inequalities: a systematic review and narrative synthesis. BMJ Support Palliat Care. 2022; 12(2):142–151.

34. Radbruch L, De Lima L, Knaul F, Wenk R, Ali Z, Bhatnaghar S, et al. Redefining palliative care – a new consensus-based definition. J Pain Symptom Manage. 2020; 60(4):754–764. PMID: 32387576.

35. Statistic Korea. Statistical Database Korea: Statistic Korea, 2023. Updated 2023. Accessed December 15, 2023. https://kosis.kr .

36. Huffman JL, Harmer B. End-of-life care. Updated 2023. Accessed December 15, 2023. https://www.ncbi.nlm.nih.gov/books/NBK544276 .

37. Heo DS, Yoo SH, Keam B, Yoo K, Choi I, Kim MJ. Hospice-palliative medicine as a model of value-based healthcare. J Korean Med Sci. 2022; 37(15):e111. PMID: 35437962.