Kidney Res Clin Pract.  2022 Mar;41(2):175-187. 10.23876/j.krcp.21.125.

Evaluating a shared decision-making intervention regarding dialysis modality: development and validation of self-assessment items for patients with chronic kidney disease

Affiliations
  • 1Division of Communication and Media, Ewha Womans University, Seoul, Republic of Korea
  • 2Department of Internal Medicine, Institute of Kidney Disease Research, Yonsei University College of Medicine, Seoul, Republic of Korea
  • 3Department of Internal Medicine, Dongguk University Ilsan Hospital, Goyang, Republic of Korea
  • 4Department of Internal Medicine, Gil Medical Center, Gachon University College of Medicine, Incheon, Republic of Korea
  • 5Division of Nephrology, Department of Internal Medicine, Ulsan University Hospital, University of Ulsan College of Medicine, Ulsan, Republic of Korea
  • 6Department of Internal Medicine, Seoul National University College of Medicine, Seoul, Republic of Korea
  • 7Department of Internal Medicine, Ewha Womans University College of Medicine, Seoul, Republic of Korea
  • 8Department of Internal Medicine, Seoul National University Bundang Hospital, Seongnam, Republic of Korea

Abstract

Background
Shared decision-making is a two-way symmetrical communication process in which clinicians and patients work together to achieve the best outcome. This study aimed to develop self-assessment items as a decision aid for choosing a dialysis modality in patients with chronic kidney disease (CKD) and to assess the construct validity of the newly developed items. Methods: Five focus group interviews were performed to extract specific self-assessment items regarding patient values in choosing a dialysis modality. After survey items were refined, a survey of 330 patients, consisting of 152 hemodialysis (HD) and 178 peritoneal dialysis (PD) patients, was performed to validate the self-assessment items. Results: The self-assessment for the decision aid was refined to 35 items. The structure of the final items appeared to have three dimensions of factors; health, lifestyle, and dialysis environment. The health factor consisted of 12 subscales (α = 0.724), the lifestyle factor contained 11 subscales (α = 0.624), and the dialysis environment factor was represented by 12 subscales (α = 0.694). A structural equation model analysis showed that the relationship between the decision aid factors (health, lifestyle, and dialysis environment), patients’ CKD perception, and cognition of shared decision-making differed between HD patients and PD patients. Conclusion: We developed and validated self-assessment items as part of a decision aid to help patients with CKD. This attempt may assist CKD patients in making informed and shared decisions closely aligned with their values when considering dialysis modality.

Keyword

Decision aid; Illness perception; Self-assessment; Shared decision-making
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