Korean J Rehabil Nurs.  2021 Dec;24(2):120-130. 10.7587/kjrehn.2021.120.

The Parenting Experiences of Mothers of Children with Brain Lesions and are at Risk of Aspiration

• Jeon H

• KMID: 2524789
• DOI: http://doi.org/10.7587/kjrehn.2021.120

Abstract

Purpose
The purpose of this study was to explore the parenting experiencesthat mothers of children with brain lesions with problems swallowing had.
Methods
Data was collected through in-depth interviews with 5 mothers who have children with this disability who have a high risk of aspiration at mealtime. The key question in this study was “What is the nature of the burden that mothers of children with brain lesions who are at risk of aspiration experienced?”. The phenomenological analysis was applied.
Results
Qualitative data were categorized into 18 themes, 6 theme clusters and 3 categories. These are the categories that were extracted: ‘Enduring the reality in which is difficult to accept’, ‘Whirlwind of emotions felt in the family’, ‘Wishes that cries out in the fog’.
Conclusion
It is necessary to develop a support program for mothers who take care of children with disabilities. Rehabilitation nursing plans should be established so that mothers of children with disabilities who are at risk of aspiration can strengthen their energy on their own.

Keyword

Respiratory aspiration; Caregiver burden; Dysphagia; Parenting