Child Health Nurs Res.  2021 Jan;27(1):75-85. 10.4094/chnr.2021.27.1.75.

Parenting experiences among fathers of prematurely-born children with cerebral palsy in South Korea

• Park J
• Bang KS

• KMID: 2512513
• DOI: http://doi.org/10.4094/chnr.2021.27.1.75

Abstract

Purpose
The symptoms and impairments caused by cerebral palsy usually require long-term treatment, resulting in a substantial burden on the family of affected children. This study explored the experiences of fathers with prematurely-born children with cerebral palsy, with a focus on how such experiences influenced their families.
Methods
A qualitative case study method was used. Nine subjects were recruited from April 2018 to June 2019 at one hospital, and each was interviewed three times by a neonatal nurse.
Results
Five core experiences of fathers were identified: "regret for an insufficient initial response", "confronting my child born as a premature baby", "the position of being a dad who can't do anything", "the process of treatment like a tunnel with no exit", and "a father's getting meaning in life through children". These stories covered an individual's timeline and family interactions.
Conclusion
Our findings suggest that fathers of prematurely-born children tend to suppress their emotions; therefore, a novel intervention program to encourage fathers' emotional expression and to support healthier interactions with their families is needed. Moreover, our findings could contribute basic information for the construction of a community-based support system to aid families, including prematurely-born children and other persons with impairments.

Keyword

Premature infant; Cerebral palsy; Fathers; Parenting; Qualitative research