Child Health Nurs Res.  2016 Oct;22(4):247-256. 10.4094/chnr.2016.22.4.247.

Mothers' Perceived Difficulties in the Management of Chronic Conditions of Children with Spina Bifida: A Qualitative Descriptive Approach

• Lim SW
• Yi M

• KMID: 2444894
• DOI: http://doi.org/10.4094/chnr.2016.22.4.247

Abstract

PURPOSE
The purpose of the study was to identify and describe the caregiving difficulties that mothers of children with spina bifida experience from their own perspectives.
METHODS
A qualitative descriptive study was designed. Data were collected from five mini-focus group interviews and four individual interviews using open-ended questions. Nineteen mothers of children with mild spina bifida participated in the study during 2014-2015. Data were analyzed using qualitative content analysis to identify major difficulties perceived by the mothers.
RESULTS
Five domains were identified with 12 subdomains. "Daily routine continence management" describes difficulties arising in bladder and bowel management for the child with spina bifida. "Management of school life of child" deals with difficulties in relation to the school facilities, such as the toilets, as well as teachers and friends. "Relationship with family and neighbors" illustrates problems in relations with their spouse, normal children, relatives and neighbors. "Maintaining physical and psychological health" includes physical and psychological problems of the mothers. "Finance" describes economic burden that the mothers face in the management of child's illness.
CONCLUSION
The findings from this study provide insight into the practical issues related to the management of chronic conditions of children with spina bifida from the mothers??perspectives.

Keyword

Spinal dysraphism; Mothers; Qualitative research

MeSH Terms

Child*
Friends
Humans
Interviews as Topic
Mothers
Qualitative Research
Spinal Dysraphism*
Spouses
Urinary Bladder