J Korean Acad Nurs.  2018 Aug;48(4):454-464. 10.4040/jkan.2018.48.4.454.

Factors Influencing Psychosocial Well-Being in Family Caregivers of People with Amyotrophic Lateral Sclerosis

Affiliations
  • 1College of Nursing, Hanyang University, Seoul, Korea. yrtak@hanyang.ac.kr
  • 2Cell Therapy Center for Neurological Disorders, Hanyang University Hospital, Seoul, Korea.
  • 3Department of Neurology, College of Medicine, Hanyang University, Seoul, Korea.

Abstract

PURPOSE
The purpose of this study was to identify factors influencing psychosocial well-being in family caregivers of patients with amyotrophic lateral sclerosis (ALS).
METHODS
A descriptive correlational design was used. The transactional model of stress and coping was used to investigate the psychosocial well-being of 137 family caregivers of patients with ALS. Data were collected through self-reported questionnaires from January to November 2016. Data were analyzed using an independent t-test, one-way ANOVA, Pearson's correlation, and hierarchical multiple regression analysis with the SPSS WIN 21.0 program.
RESULTS
The regression model had an adjusted R2 of .49, which indicated that meaning-focused coping, social support, ALS patient-family caregiver relationship (especially a spousal relationship), and tracheostomy were significant predictors of caregivers' psychosocial well-being.
CONCLUSION
Meaning-focused coping and social support significantly influenced caregivers' psychosocial well-being. Therefore, interventions to improve caregivers' psychosocial well-being must focus on increasing meaning-focused coping and social support resources.

Keyword

Amyotrophic lateral sclerosis; Family caregivers; Psychological adaptation; Social adjustment

MeSH Terms

Adaptation, Psychological
Amyotrophic Lateral Sclerosis*
Caregivers*
Humans
Social Adjustment
Tracheostomy
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