J Korean Acad Nurs.  2018 Aug;48(4):454-464. 10.4040/jkan.2018.48.4.454.

Factors Influencing Psychosocial Well-Being in Family Caregivers of People with Amyotrophic Lateral Sclerosis

• Chu HS
• Tak YR
• Kim SH

• KMID: 2424531
• DOI: http://doi.org/10.4040/jkan.2018.48.4.454

Abstract

PURPOSE
The purpose of this study was to identify factors influencing psychosocial well-being in family caregivers of patients with amyotrophic lateral sclerosis (ALS).
METHODS
A descriptive correlational design was used. The transactional model of stress and coping was used to investigate the psychosocial well-being of 137 family caregivers of patients with ALS. Data were collected through self-reported questionnaires from January to November 2016. Data were analyzed using an independent t-test, one-way ANOVA, Pearson's correlation, and hierarchical multiple regression analysis with the SPSS WIN 21.0 program.
RESULTS
The regression model had an adjusted R2 of .49, which indicated that meaning-focused coping, social support, ALS patient-family caregiver relationship (especially a spousal relationship), and tracheostomy were significant predictors of caregivers' psychosocial well-being.
CONCLUSION
Meaning-focused coping and social support significantly influenced caregivers' psychosocial well-being. Therefore, interventions to improve caregivers' psychosocial well-being must focus on increasing meaning-focused coping and social support resources.

Keyword

Amyotrophic lateral sclerosis; Family caregivers; Psychological adaptation; Social adjustment

MeSH Terms

Adaptation, Psychological
Amyotrophic Lateral Sclerosis*
Caregivers*
Humans
Social Adjustment
Tracheostomy

Figure

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  Figure 1. Conceptual framework of this study.

Reference

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