Korean J Adult Nurs.  2018 Jun;30(3):314-324. 10.7475/kjan.2018.30.3.314.

Experiences of Family Caregivers Utilizing Care Support of Dementia Center

• Kim CG
• Kwon MS
• Lee YH

• KMID: 2414442
• DOI: http://doi.org/10.7475/kjan.2018.30.3.314

Abstract

PURPOSE
This study aimed to understand the experiences of family caregivers utilizing Care Support of Dementia Centers (CSDC) in the community.
METHODS
Colaizzi's phenomenological approach was used for this study. The participants were 10 family caregivers. Open in-depth interviews were used to collect data from January 2018 to February 2018.
RESULTS
Four categories emerged from the analysis. The experiences of family caregivers utilizing CSDC included "becoming to open the mind to dementia", "forming of good field for each other", "alterations in the patterns of family life" and "hoping for a better life". There were 8 clusters of themes and 17 themes. The experiences of family caregivers utilizing CSDC were driving force of understanding about dementia, older adults with dementia and caring. The older adults with dementia accepted their disease, they actively participated in supporting programs. So, forming of another world that provide regular activities for older adults with dementia, giving rest to the family caregivers, and rearranging the pattern of life according to the schedule of older adults with dementia. Moreover, they expressed the need for a helpful and empathetic support program.
CONCLUSION
These results suggest that CSDC helped older adults with dementia and their family caregivers. Therefore, the importance of the role of dementia centers has been emphasized. It is necessary to provide guidance on the content and direction of the network of community support systems.

MeSH Terms

Adult
Appointments and Schedules
Caregivers*
Dementia*
Humans
Qualitative Research

Reference

1. National Institute of Dementia. The status of dementia [Internet]. Seongnam-si: National Institute of Dementia;2017. [cited 2017 October 2]. Available from:. https://www.nid.or.kr/info/today_list.aspx.

2. Kim KW, Kim HN, Ahn HY, Kim YJ, Whang JE, Kim BN, et al. Korean dementia observatory 2016. National Institute of Dementia Report. Seongnam-si: National Institute of Dementia;2016. December. Report No.: NIDR-1603-0015.

3. Lee DY, Park MH, Lee SJ, Kim YH, Kim JH, Kim HJ, et al. Dementia management survey for registered elders with dementia on the Seoul dementia management project. Research Report. Seoul: Seoul Metropolitan Center for Dementia;2014.

4. Burgener S, Twigg P. Relationships among caregiver factors and quality of life in care recipients with irreversible dementia. Alzheimer Disease and Associated Disorders. 2002; 16(2):88–102.

5. Cho EY, Cho EH, Kim SS. Effects of family relationship on burden of family caregivers of older adult with dementia. Journal of the Korean Gerontological Society. 2010; 30(2):421–37.

6. Seoul National University Bundang Hospital. Current status of elderly people with dementia. Ministry of Health and Welfare Research Report. Seongnam: Seoul National University Bundang Hospital;2011 September.

7. Ministry of Health and Welfare. 3rd Master plan for dementia management. Sejong: Ministry of Health and Welfare;2015.

8. Seoul Metropolitan Government. The guide to the management of dementia in Seoul, 2017. Seoul: Seoul Metropolitan Government;2017. p. 14–25.

9. Ministry of Health and Welfare. Dementia national responsi-bility system [Internet]. Sejong-si: Ministry of Health and Welfare;2017. [cited 2017 September 20]. Available from:. http://www.mohw.go.kr/front_new/index.jsp.

10. Choi SR, Park MH. A prediction model for unmet needs of elders with dementia and caregiving experiences of family caregivers. Journal of Korean Academy of Nursing. 2016; 46(5):663–74. https://doi.org/10.4040/jkan.2016.46.5.663.

11. Yun KS, Kim CG. Factors influencing educational needs for caring among family caregivers of elders with dementia in Gangwon province. Journal of Korean Gerontological Nursing. 2010; 12(3):200–10.

12. Kim SY. The effects of support program for family caregiver of elderly with dementia on empowerment and attitude to dementia [master's thesis]. Seoul: Korea National Open University;2017.

13. Sung MR, Yi M, Lee DY, Jang HY. Overcoming experiences of family members caring for elderly patients with dementia at home. Journal of Korean Academy of Nursing. 2013; 43(3):389–98. https://doi.org/10.4040/jkan.2013.43.3.389.

14. Samson ZB, Parker M, Dye C, Hepburn K. Experiences and learning needs of African American family dementia caregivers. American Journal of Alzheimer's Disease & Other Dementias. 2016; 31(6):492–501. https://doi.org/10.1177/1533317516628518.

15. Wong OL, Kwong PS, Ho CKY, Chow SMY, Kwok T, Wong B, et al. Living with dementia: an exploratory study of caregiving in a Chinese family context. Social Work in Health Care. 2015; 54(8):758–76. https://doi.org/10.1080/00981389.2015.1057355.

16. Park SY. The experience of husband caring for wife with early-onset dementia [dissertation]. Seoul: Hanyang University;2016.

17. Shin KR, Cho MO, Yang JH. Qualitative research methodo-logy. Seoul: Ewha Womans University Press;2004. p. 234–64.

18. Colaizzi PE. Psychological research as the phenomenalist views it. Valle RS, King M, editors. Existential-phenomenological alternative for psychology. New York, NY: Oxford University press;1978. p. 48–71.

19. Guba EG, Lincoln YS. Effective evaluation: improving the usefulness of evaluation results through responsive and naturalistic approaches. San Francisco, CA: Jossey-Bass;;1981. p. 1–144.

20. Robinson L, Gemski A, Abley C, Bond J, Keady J, Campbell S, et al. The transition to dementia - individual and family experiences of receiving a diagnosis: a review. International Psycho-geriatrics. 2011; 23(7):1026–43. https://doi.org/10.1017/S1041610210002437.

21. Kim HM. A study on caregiving motive, process and stress of daughter-in-law and daughter who take care of demented elderly [master's thesis]. Changwon: Changwon National University;;2013.

22. Park MH, Go YH, Jeong MR, Lee SJ, Kim SH, Lee DY, et al. Influencing factors and risk of caregiver burden of family caregivers for patient with dementia. Korean Journal of Family Welfare. 2017; 22(3):431–48. https://doi.org/10.13049/kfwa.2017.22.3.3.

23. Smale B, Dupuis SL. Caregivers of persons with dementia: roles, experiences, supports and coping. Ontario: University of Wa-terloo;;2004. p. 1–111.

24. Ministry of Health and Welfare. 2018 Dementia policy guide. Sejong: Ministry of Health and Welfare;2018. p. 1–9.

25. Park KW. Social value and sustainability of the pledge of the national liability initiative. Healthcare Policy forum. 2017; 15(3):51–6.

26. Kim MK, Seo KW. A comparative study on the national dementia policy. Public Policy Review. 2017; 31(1):233–60.

27. Broda A, Bieber A, Meyer G, Hopper L, Joyce R, Irving K, et al. Perspectives of policy and political decision makers on access to formal dementia care: expert interviews in eight European countries. BMC Health Services Research. 2017; 17(518):1–14. https://doi.org/10.1186/s12913-017-2456-0.