Development and Evaluation of Community-based Respite Program for Family Caregivers of Elders with Dementia

Cheon, Suk Hee; Chang, Sung Ok; Kong, Gye Soon; Song, Mi Ryeong

Abstract

PURPOSE
Purposes of this study were to develop a community-based respite program for family caregivers and to test the effects of the program.
METHODS
Focus group interviews were performed to extract meaning of respite care for family caregivers (13 participants) and a survey was done to identify respite needs of family caregivers (157 participants). The community-based respite program for family caregivers was developed based on results of the focus group interview and survey. The program was used with 41 participants (19 experimental and 22 control). Independent t-test and Mann-Whitney U-test were used to test differences between control and experimental groups for respite needs, burden of caregivers, subjective wellbeing, social support, fatigue and functional status of elders with dementia.
RESULTS
There were statistical differences in caregiver burden, subjective wellbeing, and social support after the program, but, none for respite needs, fatigue and functional status of elders with dementia.
CONCLUSION
The results indicate that a respite program can be useful to decrease burden of caregivers and increase subjective wellbeing and perceived social support of family caregivers in community settings. Further intervention research is needed to increase the functional status of elders with dementia and decrease fatigue in caregivers.