Korean J Hosp Palliat Care.  2016 Mar;19(1):1-4. 10.14475/kjhpc.2016.19.1.1.

Lifting Shadows off the End-of-Life Care: Hopes and Beliefs on Video Decision Support Tools for Advance Care Planning

Affiliations
  • 1The Care Quality Research Group, Philadelphia, Pennsylvania, USA. hjeong1@jhu.edu
  • 2Center for Patient Education, Philadelphia, Pennsylvania, USA.

Abstract

As advance care planning is taking center stage in the field of end-of-life care, various tools have been developed to aid in the often emotional and difficult decision-making process. Video decision support tools are one of the most promising means of assistance, of which the modus operandi is to provide more comprehensive and precise information of medical procedures to patients and their families, allowing them to make better informed decisions. Despite such value, some are concerned about its potential negative impact. For example, video footages of some procedures may be shocking and unpalatable to non-medical professionals, and patients and families may refuse the procedures. One approach to soften the sometimes unpleasant visual of medical procedures is to show less aggressive or more relaxing scenes. Yet another potential issue is that the objectivity of video decision support tools might be vulnerable to the very stakeholders who were involved in the development. Some might argue that having multiple stakeholders may function as checks and balances and provide collective wisdom, but we should provide more systematic guarantee on the objectivity of the visual decision aids. Because the decision of the modality of an individual's death is the last and most significant choice in one's life, no party should exert their influence on such a delicate decision. With carefully designed video decision support tools, our patients will live the last moments of their lives with dignity, as they deserve.

Keyword

Advance care planning; Videotape recording; Decision making; Clinical decision support systems; Palliative care; Terminal care

MeSH Terms

Advance Care Planning*
Decision Making
Decision Support Systems, Clinical
Decision Support Techniques
Hope*
Humans
Lifting*
Nimodipine
Palliative Care
Shock
Terminal Care
Videotape Recording
Nimodipine
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